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Fletcher Baby Fighting Against Rare Disease

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FLETCHER, Okla._ A baby in Fletcher is fighting for his life, after being diagnosed with a rare genetic disorder. His fight has united the town.

Baby Nash is bringing together Fletcher schools and local businesses, as he struggles against an illness that has halted his growth for the last nine months. His doctors are at a loss when it comes to treatment.

With his big smile and bright blue eyes, it is hard to imagine that Nash has undergone seven surgeries. A little over a year old, he is teaching his family and the Fletcher community how to be strong despite the odds.

"Each smile that we get out of him is just such a precious thing," stated Eric Romine, Nash Romine's father.

Eric Romine cannot help but smile when he talks about his son Nash. He was born with severe fluid on his brain, and was later diagnosed with L-1 syndrome, a genetic disorder that causes under development of the brain, mental and physical disability and a failure to grow and thrive. While it has been hard on them, the Romine family has not allowed these unforeseen challenges to take away from what they do.

"We still enjoy each day with each other, especially with our two little girls. We just cherish each day we get to spend with Nash," Romine said.

The last year has been filled with surgeries, hospital visits, and unanswered questions from doctors.

"So far, no one can give us any definite answers. The main thing that they can tell us is to enjoy him while we have him," said  Romine.

Fletcher High School student Kylie Carroll recognized the Fletcher family's needs and organized a school-wide dodgeball tournament and T-shirt sale to raise funds for a coach who impacts Fletcher students each day.

Carroll said, "If they are going to be here helping us to better our sports, why not give back to him by helping his family?"

The Romine family is grateful for all of the support. They say they will never understand why, but they are thankful for the spirit Nash brings to their family.

"I just love him to death. Everyday that I get him to smile, it just brightens my day whether it has been a good day or a bad day, just getting to pick him up, hold him and talk to him," Romine said.

Nash will soon begin therapy as doctors continue to learn more about his rare disorder. The community can track Nash's progress on the family's Facebook page "Pulling for Nash." The dodgeball tournament will take place at the Fletcher High School gym May 15th.

Donations can also be made at the First National Bank of Fletcher.

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