Miracle baby battles one of a kind illness

Miracle baby battles one of a kind illness

OKLAHOMA CITY, Okla._An Altus miracle baby continues to baffle doctors as she celebrates her first birthday Saturday.

Victoria Rose was born with a cleft lip, a cleft palate, and a hole in her heart. Those are just a few medical issues she faces on a daily basis. Her doctors at OU Children's Hospital say they have never seen anything like her before.

Victoria's mother Anesha Davis says she has been told on more than one occasion that her daughter may never make it another day, but she continues to beat the odds living 365 days more than anyone ever thought she would.

At her first sonogram appointment, just two months into her pregnancy was when Davis found out that her daughter isn't like other baby's, she is special.

"One of a kind literally. She is the only child to ever have her condition and she has a lot of similar conditions to other children like her cleft lip, cleft palate, her trach, her heart condition but she is actually she is the only person to ever be missing her 72 genes on her 7th chromosome," said Davis.

There are a number of disorders linked to the 7th chromosome but Victoria's has no name, so doctors are calling it "Victoria Syndrome."

"She is my source of strength. Like she helps me get through days when I think I just can't go on and it's just too hard but then I see how hard she is fighting and she does it so why can't I," said Davis.

Since her birth, Victoria has never left the hospital. Saturday, family and friends gathered in a meeting room a few yards from her hospital bed serving cake and celebrating her life.

"Oh my goodness! I can't even imagine that we are having her birthday party. It's crazy. You know all the times that I thought this baby has gone through so much. She has got to be tired of fighting, but she is still fighting and we're still here," said Davis.

Victoria is currently immobile recovering from open heart surgery she received last week, but Davis says her name Victoria (Victory) holds powerful meaning that her daughter can overcome anything.

Next year, Victoria needs another surgery to help with blood flow in her heart and if she gets it doctors expect her to live a long and happy life.

Victoria's mother, Anesha Davis, is a single mother of two who quit her job to be by her daughter's side.

If you would like to make a donation to help with Victoria's medical bills it can be dropped off or mailed to Tamarack Road Church in Altus.

1000 E. Tamarack Road Altus, OK 73521